Today in dysautonomia: had to abort my shower because I couldn't stand up long enough
In reply to @christianp
I tweet things like this because the ways in which I'm disabled are all pretty much invisible, and I think it's important to know that healthy-looking people live with these sorts of problems.
In reply to @christianp
I usually include a medical name for the condition I think is most relevant because otherwise "I couldn't stand up long enough" might be interpreted as "I had a big sesh last night" or something else that I could mitigate.
In reply to @christianp
But it's tricky, because I've been diagnosed with like a dozen things that overlap with each other in many ways, and nobody seems to understand what they really are, or what causes them.
In reply to @christianp
So today is it dysautonomia, or dyspraxia, or Ehlers-Danlos?
I'm fairly sure it wasn't colourblindness, at least!
I don't really like having this long list of really rare things - it looks implausible. But they all overlap, so P(dysautonomia | dyspraxia) is pretty big, I think
In reply to @christianp
Update: I mowed the lawn. My autonomic system is a land of contrasts 🤷